An Organisation’s Responsibility Following A Data Leak
When a data breach takes place, public attention often turns to financial penalties, reputational damage and regulatory consequences. However, behind every compromised record is a person whose life may be disrupted, whose trust has been broken and who may find themselves vulnerable in ways that are not always immediately visible.
This was illustrated in April 2024 when the ICO highlighted repeated breaches involving the disclosure of HIV status through improper use of email. In one case, a UK health provider copied hundreds of patients into a group email, making their addresses visible and exposing sensitive health information without consent. The ICO said this denied individuals their “basic dignity and privacy.” For many, it caused anxiety, shame and a deep loss of trust. What seemed like a minor error had serious, lasting consequences.
In response to incidents like these, the Information Commissioner’s Office (ICO) has urged organisations across the UK to place greater emphasis on empathy and meaningful follow-up in the aftermath of a data breach. Information Commissioner John Edwards made the case clearly in a recent statement. He explained that organisations have a role to play in stopping the ripple effect from spreading further.
“There are two important things I need organisations to understand: empathy and action. You have a role to stop the negative ripple effect in someone’s life from spreading further. It is vitally important to acknowledge what has happened, be human in your response and commit to making sure it doesn’t happen again.”
“We trust organisations with some of the most sensitive personal information imaginable, yet these data breaches continue to happen. This is not just an administrative mistake. It affects real people. When data is mishandled, the consequences can be serious and long-lasting, especially for those in vulnerable situations. Organisations need to do better.”
Understanding The Full Cost Of A Data Breach
The financial implications of a breach are well known. In 2024, the average cost of a data incident rose to 4.88 million US dollars. However, what is less frequently discussed is the toll on those directly impacted. Again, according to the ICO, around 30 million people in the UK have experienced a data breach. Over half of UK adults have had their data lost or stolen, and nearly a third reported emotional distress as a result.
These numbers highlight how much more needs to be done. When a breach happens, organisations must go beyond fulfilling basic obligations. Clear communication, transparency and real support must become standard. This includes providing immediate guidance on what steps individuals should take, whether that involves monitoring personal accounts or seeking emotional reassurance. Responding quickly and with empathy can help rebuild trust and reduce the longer-term damage.
Prevention Must Come First
Support after a breach is important. However, it cannot replace the need for strong preventative measures. Both morally and legally, organisations are expected to take reasonable steps to secure the data in their care.
New and updated regulatory frameworks such as HIPAA, DORA and NIS2 are setting higher standards across industries. These include specific expectations for securing data within email systems, which continue to be a common source of data loss. In response, organisations are being encouraged to implement more robust protections, such as end-to-end encryption, multi-factor authentication, data loss prevention tools and proof of delivery capabilities.
Meeting these requirements is not only about compliance. It is about recognising the duty of care that organisations owe to the people who entrust them with sensitive information.
Most Breaches Still Come Down to Human Error
While cyberattacks and malware often dominate headlines, the ICO has consistently reported that the leading cause of breaches is human error. These are everyday mistakes, such as sending an email to the wrong person, failing to remove sensitive information or misusing copy and blind copy fields.
This remains a major challenge for IT and security leaders. Yet more and more organisations are starting to recognise that the problem lies in the tools, not the people. Standard email platforms were not built with modern security in mind and often lack the features needed to prevent common errors.
The answer lies in improving the systems employees rely on. By strengthening the technology and incorporating safeguards that protect data before, during and after sending, we can reduce the risk of human error and support people in making better choices.
A Broader Responsibility
Ultimately, data protection is not just a technical requirement or a tick-box exercise for regulatory purposes. It is a fundamental responsibility. Every organisation that handles personal data is being trusted to protect it. That trust should be treated with care and respect.
The message from the ICO is clear. Organisations need to do more, both in preventing breaches and in how they respond when incidents occur. That means treating data protection as a continuous responsibility, and data breaches as serious events that affect individuals, not just abstract statistics.
By committing to empathy, transparency and continuous improvement, organisations can protect not just information but also the people behind it.
Wouter Klinkhamer is CEO & Co-founder at Zivver
Image: fauxels
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